
A new study reveals the challenges parents face when seeking support for their autistic children.
A recent study by West Midlands ADASS, in collaboration with the University of Birmingham and commissioned by NHS England (Midlands Region), has explored how parents of autistic children feel blamed when they seek support from health, education, and care services. The project worked closely with families to identify common concerns and suggest changes to ensure parents feel heard and understood.
Key Findings and Areas Explored
- Widespread Misunderstanding
- Emotional Impact
- Challenges for Autistic Parents
- Erosion of Trust
- Risk of Child Protection Proceedings
- Undervalued Parental Knowledge
- Pre-Diagnosis Blame
- Inadequate Support
Next Steps:
West Midlands ADASS has initiated a further phase of this research to explore professionals’ perspectives when working with autistic children and their parents. Starting in early 2025, a series of webinars will be offered to professionals in education, health, and social care. A webinar will also be available to parents to present the findings.
For more information and to access the full report, please visit the Autism and Parental Blame research page.
This research underscores the importance of understanding and addressing the challenges parents of autistic children face. By fostering better communication and support, we can work towards a more inclusive and supportive environment for these families.